Making your decision

Once given a diagnosis and possibly a choice of management options you may then be faced with making a decision about treatment or management of your acoustic neuroma. The decision will be a shared decision with the clinical team who will give you information about the various choices and sometimes make recommendations. However, often it is up to you to decide the best choice for you and your family. Hopefully this guide can help you with that process.

This decision may feel very difficult especially if there is not obvious choice.

These are some things that can help with the decision making process?

  • Do you need more information?
    • You can ask the clinical team that are looking after you for more information.
    • Search for information on the internet – try to stay with reputable sources – we have supplies some sources on this website.
  • Who can help me?
    • Talk to the clinical team
    • Talk to family and friends
    • Talk to people who have made the decision before you – this maybe via a website like ours and we also offer the opportunity to speak with one of our members on the phone. However remember that everyone’s experience will be different
  • If you are still not sure it may be helpful to write it all down
    • You can make a list of the options available to you and the reasons to choose a particular option or to avoid that option. You can then identify the ones you feel are most likely to happen and how important each of these are to you.
      • for example if it is important to you that the tumour is removed then this will be a high score on the reasons to choose surgery,
      • whereas if the idea of surgery frightens you, fear of the operation will score high on the reasons to avoid surgery.
      • you may then be able to identify the options with the choices that matter most to you and are most likely to happen, and those that you most wish to avoid.
    • Download this chart to help you with your decision making

Your final decision will be made in conjunction with the clinical team looking after you, but it is important that you are clear about your options and what is important for you.