AMNET was formed in 1996 when Alison Frank approached Mr David Moffat, Consultant ENT Surgeon and part of the team operating on acoustic neuromas in Addenbrooke’s Hospital, about the possibility of setting up a self help organisation. Her aim was that people diagnosed with an acoustic neuroma or other skull base tumours could talk to and receive support from someone else who shared the diagnosis and who had undergone surgery (the treatment of preference at that time).
The inaugural meeting was held at the Cambridge Hotel in Cambridge on June 1st 1996. It was paid for and attended by Mr Moffat who invited all those who had undergone surgery to remove an acoustic neuroma at Addenbrooke’s Hospital . It was attended by around 50 people. A committee was set up and AMNET was born.
Since then members have attended meetings held at Addenbrooke’s Hospital two or three times a year, usually with speakers who have provided information on many aspects relevant to people with a skull base tumour. In 1997 we produced our first edition of AMNET News and have been producing newsletters at least twice a year since then.
We have also provided support to the many people who have contacted us by phone or email over the years, offering a listening ear, access to information and sharing experience.
We have strong links with the multidisciplinary Skull Base Team at Addenbrooke’s Hospital, Cambridge, UK many of whom have spoken at our meetings and some are on our Advisory Board. Some of our members have served as ‘patient representatives’ to the Skull Base Unit Clinic 10.