AMNET meeting Saturday July 1st 2017
Our Summer AMNET Meeting fell on a beautiful day in July and we were very pleased to welcome Dr Sarah Jefferies, Clinical Oncologist, Addenbrooke’s Hospital, Cambridge, to come and talk to us.
Dr Jeffries talked about different aspects of radiotherapy in relation to treating skull base tumours. Radiotherapy is considered an appropriate option for treatment of vestibular schwannoma generally in tumours under 3 cm with no brainstem compression, and may take one of three forms:
• Single treatment or ‘radiosurgery’ using ‘Gamma Knife’ which up until now has been offered in Sheffield and London
• Radiotherapy over 30 treatments referred to as ‘fractionated radiotherapy’ which has been offered successfully at Addenbrooke’s hospital for a number of years
• Cyberknife which is radiotherapy given over 1-3 treatments which has been offered at St Bartholemew’s Hospital London.
Dr Jeffries informed us that a new machine, a ‘Novalis Linear Accelerator’ is being commissioned by the Addenbrooke’s Charitable Trust’ for use in the Clinical Oncology Department at Addenbrooke’s Hospial and will enable radiotherapy treatment comparable to Gamma Knife and Cyberknife to be offered to patients at Addenbrooke’s Hospital, alongside the treatment options already available.
Dr Jeffries with Heidi Pratchett (Chair of AMNET)
The Annual General Meeting for AMNET was also held and minutes of the meeting are available in our current newsletter.
Tinnitus Awareness Week 6 – 12 February 2017
Tinnitus Awareness Week (TAW) is an annual event which is taking place from 6-12 February. Activity will be based around the campaign ‘Together for Tinnitus’ which is intended to generate discussion about tinnitus and raise awareness of the work being carried out and support provided by the British Tinnitus Association and other services across the UK.
Tinnitus Awareness Week 2017
AMNET meeting Saturday 26th November 2016
AMNET held their Christmas meeting on Saturday 26th November at Addenbrooke’s Hospital in Cambridge. Everyone contributed towards a buffet lunch which proved to be interesting and tasty. It was a good opportunity for members to meet and chat to each other
The main event of day was a talk by Mark Smith a specialist audiologist who works in the Single Sided Deafness Clinic at Addenbrooke’s Hospital. He talked about how the clinic was set up and that it serves a wide range of people with Single Sided Deafness, including people who have had skull base surgery. He told us about what happens in the clinic and also a lot about new hearing aids and other devices that can help to improve hearing. He also described some of the plans for the future of the clinic and took time to answer questions from the audience.
After the talk we enjoyed some more food and chat and the draw for the raffle in which there were lots of lovely prizes.
Our next meeting will be Saturday 1st July 2017.
The Addenbrooke’s Hospital Skull Base Website
The Addenbrooke’s Hospital Skull Base website is now up and running and can be found at http://www.cuh.org.uk/skull-base-service/about-skull-base-service. The website contains information about the service and the teams and there is also a section of ‘Information for Patients’ including a patient information leaflet and sources of support.
(Source: Health Education England, heeoe.hee.nhs.uk)
AMNET 20th Anniversary
AMNET celebrated 20 years of supporting people who have been diagnosed with a skull base tumour. We held a day to celebrate this, on Saturday 11th June 2016 at the David Rayner Centre, Scotsdale’s Garden Centre, 120 Cambridge Road, Great Shelford, Cambridge,
Over 70 people turned up to the David Rayner Centre to join the celebration and there was plenty going on throughout the day. We would like to thank Cambridge Hearing Help and Action on Hearing Loss who were there with information, equipment and advice, Jane Robson who offered facial and hand massage, Becca Frank who was doing manicures, Chris Tate and his Tai Chi group, Bronwyn Lummis for flower arranging, Andrew Hastings with his model railway, Hugh Richards with his photographs and Helen Bush and Charlie Lummis for the music. There was also, of course, a good lunch including some very seasonal strawberries and cream!
Thank you to everyone who made Saturday such a fantastic day! To the Trustees who worked so hard before and on the day, and to all those who contributed towards making the day such a success, not to mention all the members who turned up to help us celebrate 20 years of supporting people diagnosed with skull base tumours such as acoustic neuroma (Vestibular Schwannomas).
I hope you enjoy the photos!
Photos by Hugh Richards.