President Alison Frank
Alison was the founder of AMNET in 1996 and has been a Trustee ever since. She was Chairman until 2015 and has been the first line of contact for many people who have come to AMNET over the years.
‘I had surgery to remove a meningioma, thought to be an acoustic neuroma until removal in 1993. I have two grown up children, and I am a retired Primary School teacher, and enjoy family, gardening, reading, walking, doing crosswords and listening to music.’
Chair Heidi Pratchett
Heidi has been a Trustee since 2014 and served as secretary until taking over the Chair in 2015
Treasurer Alan Gosling
Alan was elected as a trustee and appointed Treasurer in 2017.
‘I was diagnosed with an acoustic neuroma in September 2013 following an ENT referral to understand the reasons for my one-sided loss of hearing. Since diagnosis I have been on ‘Watch and Wait’ where only a minor amount of growth has been noted. I have a CROS aid to manage the effect of my hearing loss. I am married with two grown up children and I am employed as a Network Performance Manager for Northumbrian Water. Outside of work I am the District Treasurer for Lowestoft District Scout Association.’
Secretary Bronwyn Lummis
Bronwyn has been a Trustee since 2011 and Secretary since 2017.
‘Sadly I was diagnosed with an acoustic neuroma in 1994 which was devastating news to hear but after my surgery I had my facial nerve cut which meant going on to have a lot more operations to my face something which I didn’t expect! But then I heard about this AMNET group which started a couple of years later we were so pleased to have the help, support and friendship of everyone in this group and to feel you are not alone.’
Newsletter editor Sally Hardy
Sally has been a Trustee and Newsletter Editor since 2012.
‘I am a 61-year old retired nurse and am happily married and have two children and two grandchildren. Having been diagnosed with an Acoustic Neuroma in March 2011 I was offered surgery or radiotherapy immediately due to the position and size of my tumour. Surgery revealed my tumour to be a Facial Nerve Neuroma and therefore incomplete removal was agreed by the surgeons to preserve my facial function. The tumour has continued to grow, albeit slowly, and I have had a referral to Sheffield for Gamma Knife Radiosurgery. With great support from the team within Clinic 10 at Addenbrooke’s and my colleagues and friends within AMNET, I have chosen to delay Gamma Knife treatment whilst my facial function is good – so I am currently on the Watch, Wait and Re-scan schedule.’
Trustee Charlie Lummis
Charlie has been a Trustee since 2011
‘Hearing the news about my wife Bronwyn with an acoustic neuroma was terrible and terrifying but when you have the help and support of others it does help! I go along to the AMNET group with Bronwyn to help other people within the group just listening and chatting to people being a listening ear, I also help where it is needed.’
Trustee Peter Otley
Peter was elected as a trustee in 2017
‘I was diagnosed with an acoustic neuroma in 2004 at age 62.Â After ‘Watch and Wait’ but with incremental modest growth, I underwent ‘radio-surgery’ by Gamma Knife in 2008. Growth was stemmed and the acoustic neuroma is now stable. Thanks to the staff at Addenbrooke’s and support of AMNET members, this ‘little thing in my head’ is but a small and manageable part of my life. I joined the Trustees in 2017 and hope, as part of the team, to help reassure others newly diagnosed with this condition.’