The Trustees (July 2016 – June 2017)

Alison Frank

Alison was the founder of AMNET in 1996 and has been a Trustee ever since. She was Chairman until 2015 and has been the first line of contact for many people who have come to AMNET over the years.

‘I had surgery to remove a meningioma, thought to be an acoustic neuroma until removal in 1993. I have two grown up children, and I am a retired Primary School teacher, and enjoy family, gardening, reading, walking, doing crosswords and listening to music.’

HeidiChair Heidi Pratchett

Heidi has been a Trustee since 2014 and served as secretary until taking over the Chair in 2015

CarolTreasurer Carol Clothier

Carol has been a Trustee and Treasurer since 2012.

I was diagnosed with an acoustic neuroma in 2011 and after a short period of ‘watch and wait’, which showed that the AN was growing quite fast, I opted for surgery.  This surgery was successfully performed in March 2012 and I now have no hearing to my left side. Since that time it has been good to have the support and friendship of the AMNET group and discuss any problems which may arise.’

MickSecretary Mick Clothier

Mick has been a Trustee since 2012 and Secretary since 2015.

‘Carol, my wife, had surgery to remove her Acoustic Neuroma in 2011. Having seen the challenges Carol met and the support and guidance she has received from AMNET, I decided that I would repay them by joining the Committee/ Trustees and hopefully assist with my skill sets. Carol and I enjoy travelling both in the UK and abroad and I must say, that despite some side effects from the operation, she has more drive than me when it comes to DIY.’

SallyNewsletter editor Sally Hardy

Sally has been a Trustee and Newsletter Editor since 2012.

‘I am a 61-year old retired nurse and am happily married and have two children and two grandchildren.  Having been diagnosed with an Acoustic Neuroma in March 2011 I was offered surgery or radiotherapy immediately due to the position and size of my tumour.  Surgery revealed my tumour to be a Facial Nerve Neuroma and therefore incomplete removal was agreed by the surgeons to preserve my facial function.  The tumour has continued to grow, albeit slowly, and I have had a referral to Sheffield for Gamma Knife Radiosurgery.  With great support from the team within Clinic 10 at Addenbrooke’s and my colleagues and friends within AMNET, I have chosen to delay Gamma Knife treatment whilst my facial function is good – so I am currently on the Watch, Wait and Re-scan schedule.’

BronwynTrustee Bronwyn Lummis

Bronwyn has been a Trustee since 2011.

‘Sadly I was diagnosed with an acoustic neuroma in 1994 which was devastating news to hear but after my surgery I had my facial nerve cut which meant going on to have a lot more operations to my face something which I didn’t expect! But then I heard about this AMNET group which started a couple of years later we were so pleased to have the help, support and friendship of everyone in this group and to feel you are not alone.’

charlieTrustee Charlie Lummis

Charlie has been a Trustee since 2011
‘Hearing the news about my wife Bronwyn with an acoustic neuroma was terrible and terrifying but when you have the help and support of others it does help! I go along to the AMNET group with Bronwyn to help other people within the group just listening and chatting to people being a listening ear, I also help where it is needed.’

StephanieTrustee Stephanie Hazelwood-Sessions

Stephanie has been a Trustee since 2015

‘I was diagnosed with an acoustic neuroma in June 2012 and was offered and made the decision to have surgery to remove it. I went on the Internet to find out more about my surgeon and after reading about him, found a link to the AMNET internet page and through an amazing coincidence, recognised an old school colleague (Bronwyn) whom I got in touch with. She helped me through the few weeks before my surgery, I also attended an AMNET meeting. This was so inspiring and so many friendly people talked to me offering both encouragement and advice. I am married and have 2 wonderful grown up sons.

HenryTrustee Henry Sessions

Henry has been a Trustee since 2015 Until 2012 when my wife Steph was diagnosed with an Acoustic Neuroma, l like most people was blissfully unaware that such a thing existed.

After diagnosis Steph made the decision to have it removed. The road to recovery was hard at times, but knowing about AMNET we started going to the meetings, suddenly we weren’t alone, everyone was friendly, and helped by talking about their experiences. Through the meetings we never stop learning about Steph’s condition, and there is always someone to ask about any concerns we have.